Who We Support


We as an organisation provide therapeutic and consulting services to people with Duchenne Muscular Dystrophy & other neuromuscular conditions including the individual, their families, their schools, and their wider support networks. These services, provided to NDIS participants Australia wide, include initial and ongoing assessments, face to face capacity building, training, therapeutic & behavioural consultation, and resource creation for upskilling teams and individuals, and facilitation of social groups within the neuromuscular community.

As a provider, we have a comprehensive understanding of neuromuscular conditions and the impact on individuals and communities through lived experience & academic accreditation. We use this knowledge and experience to work towards our goal of improving quality of life for the individuals and their support networks.

    • 1:1 face-to-face sessions: Offering personalised, direct support to build rapport and provide specific assistance.

    • Group-based activities: Facilitating group sessions that promote socialisation and skills development.

    • Training support staff: Educating support workers and other staff members about DMD to improve the quality of care.

    • Understanding of DMD: Enhancing understanding of DMD across various support networks through continuous training and education.

    • Support for newly diagnosed families: Offering guidance and resources for families of newly diagnosed children.

    • NDIS funding assistance: Helping families navigate the NDIS system to secure funding.

    • Education for caregivers: Providing relevant resources and information to educate parents and guardians.

    • Lived experiences: Sharing real-life experiences with families to help them better understand what to expect.

    • DMD Training for all staff: Educating school staff about Duchenne Muscular Dystrophy (DMD) and its impact.

    • Supporting leadership with plans: Developing emergency cards and other necessary plans.

    • Assessment findings: Sharing results from assessments to better support students in the classroom.

    • Program building: Creating tailored programs to support both classroom learning and social interactions.

    • Modelling support strategies: Demonstrating how to effectively support students with DMD/BMD to school staff.

    • Supporting ISP (Individual Support Plan) funding applications: Assisting with funding processes.

    • Excursion planning: Ensuring activities outside of school are accessible and safe for students.

    • IEP (Individualised Education Plan) meetings: Contributing to meetings to ensure the student's needs are addressed.

    • DMD training for allied health team members: Providing education to allied health professionals (e.g., physiotherapists, occupational therapists).

    • Collaboration with a multidisciplinary team: Working closely with other specialists to offer holistic support.

    • Assessing fatigue, pain, ABAS-3, and NorthStar: Performing assessments to monitor physical and behavioural progress.

    • Sharing findings and reports: Collaborating with other professionals by sharing clinical notes and programs to ensure continuity of care.

    • Sharing assessments and reports: Coordinating with medical specialists to provide comprehensive reports and assessments where needed.