DMD Therapeutic & Behavioural Consulting eNewsletter - Vol. 2
October 2025 Edition.
Welcome to Volume 2 of our newsletter! We’re excited to bring you more stories, updates, and insights from our community.”
In this issue…
For this bi-monthly update we’re celebrating a brilliant achievement from one of our participants who created their very own recipe book. We’re also reflecting on the importance of creating a supportive environment for our placement students, and the value this brings to everyone involved. Lastly, we’re sharing a quick reminder about the Emergency Card, a simple but powerful tool we recommend all families have on hand.
COMMUNITY SPOTLIGHT…
What a wonderful September it has been! Our annual World Duchenne Awareness Day (WDAD) gathering was such a joy to celebrate.
It was more than just a chance to raise awareness for Duchenne and Becker — it was an evet that brought together our wider neuromuscular community, a community we feel so grateful to be part of.
Even though we may not provide services to everyone who came along, please know how much we appreciated seeing each and every one of you there.
SUCCESS STORIES…
Charlie, a 17-year-old living with Duchenne Muscular Dystrophy, created this book as part of his Year 12 Studies. With a deep appreciation for his family’s recipes and a passion for food, Charlie wanted to make sure these treasured meals were preserved, and, accessible to others living with DMD or similar challenges.
With support from DMD Consulting, Charlie thoughtfully included tips and tricks that reflect his lived experience - small but meaningful ideas that can help make cooking more manageable and enjoyable. From ways to conserve energy in the kitchen, to choosing tools that are easier to use, Charlie’s insights offer practical guidance for others who may be navigating fatigue, mobility limitations, or fine motor difficulties.
This recipe book is more than just a collection of family favourites. It is a celebration of creativity, perseverance, and the power of sharing what we love with others.
RESOURCE OF THE MONTH…
Emergency Care Card
In an emergency, having the right information on hand can make all the difference. We’ve developed a free Emergency Care Card for young people living with Duchenne Muscular Dystrophy (DMD) to help families, schools, and support staff share important care information quickly and clearly.
The Emergency Care Card is available at no cost and can be ordered directly by contacting us. We encourage families to keep one close and to share copies with schools, caregivers, and other key people in their child’s support network.
DMDTBC Emergency Care Card
THERAPEUTIC TIP OF THE MONTH…
Assessments
When we think of assessments, this is generally to inform the NDIS of our children's needs however they are important and used to evaluate their strengths, to assess levels of expectation, consider fatigue and physical ability and the effects of cognition, motivation and staying on task, in the home, at school and in the community. The number 1 behaviour that we see within the neuromuscular community is refusal, “no i don't want too”. Our focus for therapeutic tips will be strategies and understanding to best support participants within the neuromuscular community, but this cannot happen without assessments!
BEHIND THE PRACTICE…
PLACEMENT STUDENTS
DMDTBC values having placement students, Tom is an established therapist within the business, however originally joined as a Flinders placement student in 2021. Over the last two years DMD consulting has taken Flinders DE students to complete various placements. DMDTBC is committed to providing an environment that allows students to learn and understand the scope of practice for Developmental Educators and neuromuscular conditions. Having placement students highlights our own practices and assists us to evolve DMDTBC and build knowledge within the DE community.
SPIN KIDS…
Spin Kids is our social group for children aged 5-12 (age can be flexible) with neuromuscular conditions. It’s a chance to connect with others, make friends, and share in fun activities together — whether that’s activities in the office or outings in the community with the group.
Here’s what’s coming up over the next few months:
Saturday 25th October | 12:00–2:00 pm – Catch-up at Semaphore Yochi
Saturday 15th November | 12:00–2:00 pm – Movies and PJs at The NeuroHub
We’d love to see you at these sessions.
UPDATES FROM THE TEAM…
Tom is currently enjoying a well-deserved holiday in England, where he’s spending time with family and taking a break. He’ll be back with us from the 14th of October, ready to dive back into the sessions we know many of you look forward to. We hope he enjoys every moment of the trip and brings back a few good stories to share!
SAVE THE DATES…
DMDTBC are working behind the scenes with some community partners to create Christmas time celebrations, please save these upcoming dates!🎄
Sunday 23rd of November
Saturday 13th of December
COMMUNITY PARTNERS…
ORTUS SUPPORT SERVICES
Nash is the owner of a small support business in South Australia who was supporting Michelle’s son, Jack, which has lead Nash into the neuromuscular community. The business has now grown and Nash and his small team of staff support several of our participants, but also provide tailored experienced care those without neuromuscular disabilities. The responsive staff support children to access mainstream environments and activities within their community, whilst also providing personal care needs. The staff are fun and seek connection with the kids, allowing rapport to be built! Whilst Ortus Support Services has grown, Nash prides himself on providing personalized care tailored to the different needs of each participant.
THANKS FOR READING!
YOUR FEEDBACK IS APPRECIATED
If you have any questions or comments about the content of this eNewsletter, or about our services in general, we would love to hear from you. Your feedback is greatly appreciated and helps us improve our services.
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